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Kathy's Blog May 2010

Submitted by editor on Thu, 05/06/2010 - 15:10
 

I wonder why it is that young people with Parkinson's don't join the UPBEAT group in their area?

Is it because they don't want to go public?
 
Is it because they see it as an old persons' disease and think that only 'old' people will be there?
 
Is it because they are busy working?
 
Does UPBEAT need to offer something that it currently does not?
 
The UPBEAT conference I attended in 2008 in Hamilton was fantastic.  I meet others of similar ages with PD and spoke with them and their partners over the weekend and it was most informative.  But other than the UPBEAT group in Palmerston North, I didn't get the impression that other regions had active groups.  Am I wrong?
 
Here in Hawke's Bay I have tried to start the ball rolling and other than a couple of meetings, nothing else has happened.
 
What can we do?
 
Comments would be most appreciated!
 
PS There is to be an UPBEAT conference in Palmerston North 5/6/7 Novemebr 2010 - BE THERE!!!!

Comments

In response to your blog

Submitted by Anonymous (not verified) on Sun, 12/18/2011 - 01:08.

In response to your blog asking why young people with PD don't join upbeat. In this case, it is because of work commitments. There doesn't seem to be a support group that meets at a time that suits work commitments of a full time worker.

If there IS one in the Wellington regional area, I would be very interested. I look forward to a response here.

There is an early-onset group

Submitted by editor on Tue, 01/17/2012 - 11:48.

There is an early-onset group in Wellington who meet out of work hours, however currently these are occasional rather than regular events.  Please get in touch with the Wellington Field Officer Diane wgtnfieldofficer@xtra.co.nz who can tell you more.

 

In response to your question

Submitted by Anonymous (not verified) on Sun, 12/18/2011 - 01:04.

In response to your question asking why young people with PD don't join upbeat. In this case, it is because of work commitments. There doesn't seem to be a support group that meets at a time that suits work commitments of a full time worker.

If there IS one in the Wellington regional area, I would be very interested.

hello there from me here in

Submitted by Dianne (not verified) on Sat, 07/16/2011 - 01:18.

hello there from me here in the south... hope everyone is keeping warm..
im still ttrying hard to keep active and smile ..and along with the daily exercise program of moon walking with michael Jackson.. life plods on but with hickups
, is there anyone at all who is on the apomorphine infusion pump . I REALLY LOVE TO HEAR FROM YOU PLEASE... IT SEEMS ONLY FEW PEOPLE HERE THAT AARE USING THIS TREATMENT..
ID LOVE TO HEAR FROM YOU
keep warm all hopefuly soon there will be another upbeat gathering somehwere .. take care '
Dianne
Dunedin Upbeat

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